Medical problems (strokes and other causes of damage to the brain) can shut down a person’s ability to speak and write. If a family member or friend has lost the ability to speak and write, what’s to be done?

Consider the position of this daughter (we’ll call her Nancy) whose mother has had a stroke:

“Mom read to me when I was a child. We talked about everything. Moms had a stroke. She can’t speak, and can’t write. I can’t tell what Mom is thinking, but I know she’s frustrated. I hate seeing her like this.”

What should Nancy do?

The first thing for Nancy to do is to get help. She should contact the doctor, and request that an evaluation be done by a qualified speech-language pathologist (a therapist, professional trained in helping people get back language skills and learn other ways to communicate). In most cases, Medicare or other insurance will pay for the evaluation and some amount of therapy.

Nancy should be present for the evaluation, if at all possible. The evaluation will help determine what therapy is available and advisable, and help to develop a plan and schedule. Nancy can be an advocate for her Mom. She will be able to share her observations concerning her Mom. She should ask the therapist about using specific testing to learn which areas of the brain have been impacted, and what treatments are possible.

Nancy can also work with the therapist to:

  • Find a way for her Mom to communicate “yes” and “no” answers.
  • Check that her Moms answers show true understanding on her part.
  • Find new ways to send and receive messages (drawings, pointing and other gestures, picture cards, communication boards, computer systems, etc.).
  • Learn ways that Nancy and others can work with her Mom, independent of the therapist.

 

When speaking to her Mom, Nancy needs to make sure that her Mom understands Nancy’s message. The stroke may have impacted her Moms ability to recognize or understand the meaning of words. When speaking to her Mom, Nancy should:

    • Remove background noise and distractions,
    • Move her lips, and keep them visible to her Mom,
    • Use a normal voice, and speak slowly and distinctly,
    • Use simple words, and use simple questions (where a “yes” or “no” answer will work).

     

    Nancy should acknowledge the frustration (Moms and hers), and try not to let it get in the way of communicating. She also needs to show her support, treat her Mom as an adult, and try to be patient and calm. Being patient and calm will also help Nancy pick up the messages her Mom is sending.

    Adjustments are needed. Past patterns and expectations don’t work now. Nancy’s Mom needs extra help. So does Nancy. She is dealing with difficult stresses, and should find support for herself, through family, friends and caregiver support groups.

     

    For Fact Sheets for Caregivers to deal with Dementia and Alzheimer’s:

    Family Caregiver Alliance
    www.caregiver.org/fact-sheets
    If you are a caregiver seeking help with caregiving: Please call their toll-free number, 800-445-8106.

    For resources involving stroke or brain damage:

    National Aphasia Association
    www.aphasia.org/aphasia-resources/stroke

    Family Caregiver Alliance
    www.caregiver.org/stroke
    If you are a caregiver seeking help with caregiving: Please call their toll-free number, 800-445-8106.

    American Stroke Association
    Stroke Family Warmline:
    1-888-4-STROKE or 1-888-478-7653
    Monday-Friday: 8AM-5PM CST

    Stroke Association of Southern California
    www.strokesocal.org
    Phone: (310) 575-1699

     

    Updated July 2020